Dilantin, 0mg »
Actually, I just took a single pill (100mg), but it's the last (I hope). Starting tomorrow there should be no more. We'll see how it goes from here. As long as I keep getting a good night's sleep, and eating consistently, I seem to be feeling pretty good. I hope it keeps up.
Comments (2)
So, are you totally off of the dilantin? I just happened to this site... I had a head injury in 2001 resulting in seizures.. partials. Have been on dilantin since 2002... been trying to go off of it since... tried 3 times and had small seizures, but I want to try again... I have gone 2 days at a time with no meds and actually feel ok, then I get scared and take a pill or two... are you totally off? Do you know how long it takes to get it out of your system?
Posted by trisha on February 4, 2007 8:16 PM
Hi Trisha - Yes, I am completely off of Dilantin. I haven't had any since April of last year. I am currently taking Zonegran instead.
I took Dilantin for about twenty years.
I can't say exactly how long it takes it to get completely out of your system, but for me it took about six weeks to completely wean off of Dilantin and onto Zonegran. However, this wasn't completely cold turkey, and I was ramping up the Zonegran at the same time. If you completely stopped taking Dilantin, it would probably get out of your system much faster.
As to stopping taking it, that's not something I can advise. Only you (and your doctor) can make that call. If your head has had some sort of trauma to induce you to seizures, then the Dilantin will likely be helpful to keep you from having seizures. Stopping the medication will perhaps lead you to having more.
For me, it was worth continuing to take the medication rather than risking it. It sounds like you're not interested in taking the medication. I'd talk to a doctor rather than trying to stop taking it. If you were to have a seizure at an inopportune time, you may not be happy with the results.
Posted by Chad Everett on February 5, 2007 6:34 AM